Jess only has five more treatment sessions left. We can all now finally see the light at the end of that tunnel. Well, kind of…
Week eight has been very chilled for us all. The weather has been rubbish so we have just chilled out in our apartment and hung out with some of our wonderful American buddies. Oh, and tried to catch up on some SLEEP!
After weeks on end of very little sleep and trying every trick in the book, Dr Danny feels Jess has quite possibly developed a sleep disorder. This is due to her tumour pressing on the ‘sleep’ part of her brain. Jess’ doctors back home in Oxford are going to have to investigate this when we get home. I guess it’s just another condition we are going to have to deal with. Not a biggie in the grand scheme of things, but Mr Sleep how I miss you.
Despite her non-sleeping and the thick black circles under her beautiful big brown eyes, Jess is still doing well and amazes us every single day. We had yet more fantastic news from her weekly MRI last week. The tumour has remained the same size again. Like I’ve said in my previous blog, we will take no growth every day of the week. You go girl!
Jess had an extra special treat when she woke up on Sunday morning. The arrival of Nana Chris! Jess was just as excited to see her other Nana. She is so blessed to have fantastic grandparents. They spoil her rotten with love. I think Jess and Nana had missed their long walks together as Nana Chris was straight out taking Jess on a little adventure.
I had a treat of my own Monday evening. My whole family got together for a Skype call. It was so nice to see and chat to everybody. Mum, Dad, Gareth, Scott, Danielle and Hannah. They are all such jokers and managed to put a massive smile on my face for the rest of the evening. Thank you guys, I love and miss you all so much. We have had our ups and downs but I love you all so much. You have been such a tremendous support through all of this. I will NEVER be able to thank you enough.
The whole feel of Proton has changed this week as two of Jess’ buddies have finished up. We are so happy for the families as this part of their ‘cure’ is now over. However, we are sad as we are going to miss them all bunches. I ask you to say a little prayer for these two precious boys.
Cruise – After nearly a year’s worth of Chemo and two months of Proton, Cruise has ‘only’ a few more weeks left of hard core Chemo before the gruelling waiting game begins to see if treatment has worked.
You can poison me but you will never keep me down – Cruise Verdecchia
Cruise is two this month and such a smart, brave little solider. You go Cruise! (He seriously said that quote.)
Tucker – We have spent a lot of time with Tucker and his family. He and Jess could play for hours. I asked Tucker this week if he could marry Jess when he gets older and he replied in the most sweetest South Carolina voice “sure”. With every single word he says my heart just melts. He is adorable. Tucker, Carley and Tyler are simply awesome. (I sound more and more like an American each day.)
I wish I could say that Tucker is through with his treatment now that Proton in finished. However, he has a long journey ahead of him with a year’s worth of Chemo to tackle when he gets home. I ask you to pray for him and his wonderful family to get them through this tough time. They have so much faith and I admire them for this, God bless you Tucker.
I’ve never cried as much in my life as I have done since the moment Jess got diagnosed and I’ve aged by at least 10 years. You never expect to be told that your kid has a brain tumour and I struggle to understand why this has to happen to my beautiful baby every single day. On our journey we have met so many inspirational families who I would now class as our friends. I thank God every morning that we do not live in the shadow of cancer, as it would seem most of the children here do. Talking to these families makes me realise just how lucky I am.
I’m hopeful that this treatment will work on our little girl but only time will tell. I can now see the light at the end of that very long tunnel but the battle will never be over for Jess with an agonising MRI every couple of months.
However, I’m hopeful that we have found our cure.